Delhi: Rs 16 crore will be spent on the treatment of a 10-year-old child, parents dependent on crowd funding
In the national capital Delhi (Delhi), a ten-year-old child (Rehansh Suri-Rehansh Suri) has fallen victim to a rare disease. It will cost 16 crores rupees for the treatment of Rehnsh. According to the report, now the parents of the child are trying to raise money through crowd funding. Rehansch's mother said, "Rehansch is a rare disease called Spinal Muscular Atrophy Type I. Ramsh can only be treated through gene therapy in the United States, which will cost 16 crores. We do not have this much money. "
Dr. Anne Matthews stated, "Children suffering from this disease do not live beyond 2 years. He is fine now, but will weaken and will not be able to sit, swallow or breathe. There is only 1 treatment where he can be given a missing genetic code through the virus. It is a one-shot treatment and the most expensive drug. "
22 crores received for treatment of Tira
Earlier, a girl named Tira in Mumbai also needed about 22 crore rupees for treatment. These money were raised only through crowd funding. 5-year-old Tira Kamat is also suffering from a rare health problem with spinal muscular atrophy. This problem of the child's parents was treated by ordinary people all over the world. People from about 10 countries sent money for treatment of Tira through the website.
Donations ranging from 100 to 5 lakh rupees
For the treatment of Tira, people donated 100 to 5 lakh rupees. The central government also helped the family by giving a tax rebate of Rs 6 crore on its behalf. Teera's parents Priyanka and Mihir Kamat appealed to people on social media for help. SMA is a rare genetic condition that results in loss of muscles. These muscles are necessary for movement.